The Disabled Lived Experience & SMA Awareness Month

In this episode, I share 3 statements from a social media post that can be frustrating as a disabled person! In case you don’t know, August is SMA Awareness Month. Spinal Muscular Atrophy is a genetic degenerative neurological disease that attacks the central nervous system. Because I feel strongly about raising awareness of all disabilities, my guest is Sarah Bartlett.

Sarah Bartlett lives and works in Mississauga, Ontario. She is a high school Media Art teacher specializing in graphic design, photography video. She and her husband Myles have two children. Her daughter Stella was born in 2010 and was diagnosed a year later with a degenerative neuromuscular condition called Spinal Muscular Atrophy (SMA).
Since then the Bartlett family has become involved with fundraising for treatment and family support, and advocates for disability rights.

She can be reached at http://thisisstella.com/

ABLE Account Information can be accessed at: https://www.ablenrc.org/